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Resources and Support

At Genzyme, we are committed to helping medical professionals get the information and resources they need to provide comprehensive care for their patients with lysosomal storage disorders.

That is why we developed LysoSolutions--a network of programs and services designed to support people living with lysosomal storage disorders as well as those who care for them. These programs and services were developed to help physicians optimize patients' individual treatment programs by meeting specific patient and professional needs, and to support the investigation of improved therapies for lysosomal storage disorders.

LysoSolutions offers:

Research and development programs to continue to investigate new and innovative treatments for Gaucher disease and other lysosomal storage disorders
Information on Genzyme's current clinical trial programs for lysosomal storage disorders
Disease registries, including the Gaucher Registry, a resource to help increase the understanding of Gaucher disease
A network of medical specialists that connects patients to health care professionals with expertise in lysosomal storage disorders such as Gaucher disease
Gaucher disease information and educational resources available by request
Information on diagnostic testing and genetic counseling
Patient resources and advocacy to help connect patients and their families to others living with similar diseases
Health insurance and reimbursement information to help ensure crucial medical needs are being met

LysoSolutions

Highlights
Did You Know...
Gaucher disease is confirmed by an enzyme assay showing glucocerebrosidase activity that is 30% or lower than normal values of presence of that enzyme.

Highlights
Did You Know...
The Gaucher Registry, a database of clinical information on patients with the disease, includes data on more than 2,000 patients’ responses to enzyme replacement therapy (ERT).

Contact Information
Genzyme Therapeutics
500 Kendall Street
Cambridge, MA 02142

800-745-4447
617-768-9000

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