To help your child cope with Gaucher disease, Genzyme offers a Gaucher Pen Pals Program.

Children with this disorder may find it valuable to communicate with peers who have been through experiences such as chronic fatigue, bone pain and other symptoms, and enzyme replacement therapy. Such support and understanding may help them to cope with the disease.

The Gaucher Pen Pals program may help you find such a friend for your son or daughter with Gaucher disease. Participating children can share what it’s like for them to have Gaucher disease, write to each other, share stories, and help each other out.

The information in the Pen Pal program is considered confidential. The information will be used only to facilitate Pen Pal correspondence and will not be shared with anyone not directly involved in the Pen Pal program without your permission.

Who is eligible?
Children between the ages of 5 to 17 with Gaucher disease can participate.

How does the program work?
Participants are matched with those who have similar ages and interests.

How do I enroll?
Download and complete the Pen Pal Questionnaire and Permission Slip (PDF) and mail to:

Jennifer Pettengill, MSW
Genzyme Treatment Support
500 Kendall St.
Cambridge, MA 02142.

If you would like to learn more, call 800-745-4447 x16647