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Related Links

The links listed below will connect you to sites containing information and support from professional medical organizations, hospitals, national and international Gaucher disease groups, patient support organizations, and medical centers specializing in Gaucher disease care and research.

Children’s Gaucher Research Fund

http://www.childrensgaucher.org

Gaucher Registry

http://www.gaucherregistry.com

Genetic Alliance

http://www.geneticalliance.org

Health Care Information Resources

http://www-hsl.mcmaster.ca/tomflem/top.html

International Gaucher Disease Associations

http://www.gaucher.org.uk/overseas.htm

National Gaucher Foundation (USA

http://www.gaucherdisease.org/

National Institute of Neurological Disorders and Stroke

http://www.ninds.nih.gov

National Organization for Rare Disorders (NORD)

http://www.rarediseases.org

National Society of Genetic Counselors (NSGC), Inc.

http://www.nsgc.org/resourcelink.asp

National Tay-Sachs & Allied Diseases Association

http://www.ntsad.org

Pediatric Database

http://www.icondata.com/health/pedbase/index.htm

Society for Inherited Metabolic Disorders

http://www.simd.org


LysoSolutions

Highlights
Did You Know...
In order to continue to benefit from enzyme replacement therapy, Gaucher patients must receive the treatment for the rest of their lives.
Learn more about the importance of ongoing treatment
.

Highlights
Did You Know...
Because some Gaucher symptoms are similar to those of other, more common diseases, people with Gaucher disease may be misdiagnosed.
Learn more about diagnosing Gaucher disease
.

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