Our dedicated team of professionals is available to provide diseaseeducation and help address your needs, including assistance with health insurance issues, all free of charge.
CareConnectPSS is designed to support each patient’s unique journey to help you overcome challenges related to living with a rare disease.
The Cerezyme Support Program has been designed by Sanofi Genzyme to help educate and support patients taking Cerezyme. The program covers important topics like:
Establishing your treatment routine with Cerezyme
Regular email updates on topics important to people taking Cerezyme, including communicating with your health care team
E-magazines offering tips from Gaucher disease experts and stories from people who are living with Gaucher disease type 1
Mobile text messages (SMS) with helpful tips and treatment reminders
Enroll today! Call 1-800-745-4447, Option 3, Monday through Friday, 8:00 AM to 6:00 PM EST
Fill out our request information form to get more details on disease education, treatment information, financial support, and patient support.
Access to these and other services is voluntary, and patients are not obligated to begin treatment if they contact us. You and your physician will make all treatment-related decisions, and, most importantly, the privacy and security of your personal information are always protected.
Below are various professional medical organizations, national and international Gaucher disease groups, Gaucher disease education websites, and patient assistance programs that work to support Gaucher disease patients and their families and caregivers.
All information and resources provided by these organizations are operated and maintained by the entity listed below. Please note this list is meant to serve as a general reference and additional resources may also be available through other organizations. With the exception of the specific Sanofi Genzyme* resources listed below, Sanofi Genzyme does not endorse any particular organization or the content and programs they offer.
CAN was created to support family caregivers of loved ones with chronic conditions, disabilities, or disease. CAN provides free education, peer support, and resources.
The CGRF is a non-profit organization that raises funds to support research aimed at finding a cure for Gaucher disease. The CGRF website provides education to families affected by the disease, as well as a network of other Gaucher families in the United States and internationally.
CPN is a non-profit organization created to support and guide parents caring for sick children. Its website provides useful resources, videos, and podcasts for parents.
GaucherCare is a website designed to provide patients and their families with education and helpful resources related to Gaucher disease.
Genetic Alliance is a non-profit advocacy organization that provides education and research tools to individuals, families and communities about genetics and health.
The GDF is a non-profit foundation whose mission is to support research, education and prevention of genetic diseases. The GDF website provides education programs to increase public awareness of genetic diseases.
The NGF is a non-profit organization offering education, patient services, and financial support to patients with Gaucher disease.
NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. The NORD website provides information and resources supporting patients with rare diseases and their caregivers, including RareCare®, a program that provides medication, financial assistance with insurance premiums and co-pays, diagnostic testing, as well as travel for clinical trials or disease specialist consultations.
The NSGC is a professional organization representing genetic counselors throughout the country. You can use the NSGC website to locate a genetic counselor in your area who can help you better understand the risk of Gaucher disease in your family.
PAN is a non-profit foundation dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications.
PSI helps patients with specific, rare chronic diseases, including Gaucher disease, find financial support for their treatment. PSI offers assistance with the following: cost of health insurance premiums, pharmacy and treatment co-payment, Medicare Part D co-insurance, and travel costs related to treatment.
SIMD aims to increase knowledge of and promote research in inborn errors of metabolism in humans and to stimulate interactions between clinicians and investigators in inborn errors of metabolism. SIMD seeks to foster training and maintenance of a core of qualified investigators and practitioners in the field and to promote public understanding of inborn errors of metabolism. SIMD is a nonprofit professional organization.
*Program/website is owned and operated by Sanofi Genzyme
Cerezyme® (imiglucerase for injection) is indicated for long-term enzyme replacement therapy for pediatric and adult patients with a confirmed diagnosis of Type 1 Gaucher disease that results in one or more of the following conditions:
Approximately 15% of patients have developed immune responses (antibodies) to Cerezyme during the first year of therapy. These patients have a higher risk of an allergic reaction (hypersensitivity). Your doctor may periodically test for the presence of antibodies. Serious allergic reactions (anaphylaxis) have been reported in less than 1% of patients. Symptoms suggestive of allergic reaction happened in approximately 7% of patients, and include itching, flushing, hives, swelling, chest discomfort, shortness of breath, coughing, cyanosis (a bluish discoloration of the skin due to diminished oxygen), and low blood pressure. If you have had an allergic reaction to Cerezyme, you and your doctor should use caution if you continue to receive treatment with Cerezyme.
High blood pressure in the arteries of the lungs (pulmonary hypertension) and pneumonia have been observed in less than 1% of patients during treatment with Cerezyme. These are also known complications of Gaucher disease regardless of treatment. If you experience symptoms such as shortness of breath or chest pain, with or without fever, contact your doctor.
Approximately 14% of patients have experienced side effects related to treatment with Cerezyme. Some of these reactions occur at the site of injection such as discomfort, itching, burning, swelling or uninfected abscess. Other side effects, each of which was reported by less than 2% of patients, include nausea, abdominal pain, vomiting, diarrhea, rash, fatigue, headache, fever, dizziness, chills, backache, and rapid heart rate. Temporary swelling in the legs has also been observed with drugs like Cerezyme.
Please see Full Prescribing Information (PDF).